This is a blog for my daughter Scarlett. She was born with a complex congenital heart defect known as Tetralogy of Fallot with Pulmonary Atresia. She is my little hero.

Thursday, September 10, 2009

Rough Night - Fussy Baby

She's asleep right now (6am), but wasn't about 10 minutes ago... she was crying, crying, crying, poor little baby. They came in at 5am to take chest x-rays (good morning to you too!...), and woke her up and she wouldn't settle back down again until just now.

Same thing happened last night. Fussy, crying, irritable, didn't go to bed until after midnight. Inconsolable... I felt so sorry for her. Poor girl.

Her oxygen levels aren't what they should's unusual and has me a little concerned. When she's awake whether fussing, crying or even just moving (the slightest stirring), her oxygen levels take a dip (in the 60s), but then when she sleeps or lies still, she's okay again (above 75). The nurse (Laura) said this is not typical. Laura said Scarlett does a lot of mouth breathing so that could also contribute to her low-ish O2 levels when she's awake.

Last night the nurse tried to turn off the O2 to see how she'd react, and sure enough, her sats took a dip, so we had to leave it on. I'm getting a little worried that she might have to come home on oxygen. BTW: I have a new found respect for any heart mom whose child is on oxygen...Lord Bless You... Scarlett keeps trying to pull the tubes out of her nose, it is obviously uncomfortable/annoying for her and she screams when you try to tape them back on. (ugh)

She also sounds like she has some upper chest congestion, but when the nurse tried to suction her, little to nothing came out. She doesn't have a fever, and she's eating fine (no vomiting yet!), but she sounds really boogery/congested.

The nurse did say that between 3:30-5 this morning, she was able to turn off the O2 and Scarlett did okay (she was sleeping of course), but as soon as she woke up, there they were in the 60s again. So, she had to turn it back on. We'll see what the docs say in rounds today.

Oh yes, one last thing, her 'site' looks great. Laura took off the pressure bandage last night around 10:30pm and of course Scarlett didn't like it, but it looks so much better than I thought it'd look. yay! :) I took off her silly oversized hospital gown and put her in a onesie. Here is a pic of her and Laura I took this morning.

1 comment:

  1. So sorry for the rough night, but I am so GLAD to hear the cath went well. She must be out of sorts from the anasthesia and procedure! Can't blame her. Hope the 02 gets figured out. 02 at home is very do-able!