This is a blog for my daughter Scarlett. She was born with a complex congenital heart defect known as Tetralogy of Fallot with Pulmonary Atresia. She is my little hero.

Thursday, September 24, 2009

One Week From Today

It is hard to believe that one week from today my precious 7 month old little baby will be fighting the greatest battle of her life to date. She's been so happy lately. Laughing, playing, teething, doing the army crawl, eating solids...

She even has her appetite back, putting down 4 sometimes 5 ounces at a time. She's mastering sitting up like an old pro. She still falls/tips over every now and then, but she's getting better at it every day. I have to believe in my heart that she's going into this surgery stronger than ever, so she'll come out of it stronger than ever.

I bought Scarlett a Tinkerbell costume for Halloween. Violet's going to be either a witch or Cinderella (it all depends on her mood that day). I'm trying to keep my mind occupied with things other than Scarlett's major open-heart surgery in one week, but it's very difficult not to think about it when everyone I run into asks me "How's the baby?".

I find myself saying "well, her surgery is going to be on Oct 1...etc", to people who don't even know that she has a heart defect,..they were just asking me cuz they know I just had a baby...(oops). Its happened to me 3-4 times already. I guess I just assume everyone at my work knows about her CHD and her upcoming surgeries, I forget that there actually are people who have no idea. No idea the little private hell I go thru everyday. I really hate being a working mother. Maybe from now on, I'll just say "She's doing great" no matter who asks me. That covers it anyway, right?


  1. You are right , she is soooo strong. I pray for you guys everyday. Like I said before, she has sooooo many Angels watching over her. I will keep in touch.
    Love to all,

  2. I too agree she is a strong baby! I know we have never meet.. but I pray for you guys everyday and I cant say I know what ur going thru cause I dont, but I can say that when my son had his I was very scared and worried because of his syndrom the open heart surgery put him at very high risk... but these kids are so strong. Im here for you and if u ever need someone to go sit with you or just need to talk..plz im here <3 from one heart mom to an other <3 And u do have alot of really good angles watching over her!! feel free to call me at anytime (520)-300-1826

  3. I know what you mean about hating working and some people know and some don't and you never know what to say- or say the wrong thing. It's easy to figure out what to say when things are going relatively well, but when you're an emotional wreck- you either want to tell all about it so people know why you're not yourself and to share your baby's story. Or you're just too tired or think they don't really want to know and give the "she's fine" or "I'm fine" response.

    I obviously haven't been in your shoes yet with awaiting a surgery date and can't imagine the dread that you're feeling, but hang in there. I know that it's impossible to keep yourself from thinking the worse, but don't forget that one week from today could also be the first day of a very successful surgery and the road to recovery.

    You're in my thoughts and prayers!

  4. We are praying for you. I know you are probably going crazy just waiting for the surgery. Scarlett looks amazing and adorable!