This is a blog for my daughter Scarlett. She was born with a complex congenital heart defect known as Tetralogy of Fallot with Pulmonary Atresia. She is my little hero.

Friday, September 11, 2009

Going Home Today!

This is what I saw when I came to the hospital after work. My baby sitting up in her hospital crib playing with her toys with NO OXYGEN! yay!, But alas...., her oxygen sats were down, so they put the nasal cannula of O2 back on her. She was not happy.

APRIA called me at 4pm and said that they should have the O2 tank here by 8pm, so we're going home when they get here! Yippee. I know Scarlett is not happy being here. My poor little darling.

Again, a shout out to all the heart moms whose babies are or were on O2 at home. I don't know how you guys did it. Scarlett hates the tubes and gets really upset and keeps pulling it out of her nose. She gets really mad. I concur there's a special place in heaven for heart moms with kids on O2, feeding tubes, or pulse-ox machines... God Bless Us!


  1. Those pics are precious. Especially Love the pouty face with the O2 on!
    PS: Ethan had a 2 vessel cord and I had an inflamed gallbladder too. I never had stones and the inflammation went away so I ended up not getting it removed (think I may have had a virus. . . Hmmmm!
    Crazy similarites there!

  2. She looks great. Sorry I missed your call. I check your blog everyday, but dint want to bother you. Please call me when you can.Thats weird they thought I had a virus and Andie's cord was very very short. I also delivered a chunk of placenta, then Andie, then the rest of my placenta.Hmmmmm maybe we should do some investigating.