This is a blog for my daughter Scarlett. She was born with a complex congenital heart defect known as Tetralogy of Fallot with Pulmonary Atresia. She is my little hero.

Wednesday, December 2, 2009

Grandpa's Funeral

Today we say goodbye to Grandpa Fred. I wasn't planning on taking Scarlett and Violet, but I'm told that grandpa would have wanted them there. So we're taking both of them. Grandpa Fred lost his battle with ALS ("Lou Gerhig's Disease") after a 6 year fight.

I really feel like Scarlett and her grandpa were a kindred spirit since they both have medical ailments requiring a lot of the same equipment (feeding tubes, oxygen, ventilator, etc..). I am sad for my husband and his siblings for their loss, and I am sad for my girls. That they will never know him except for in pictures. Today is a sad day.

1 comment:

  1. I am praying for you all! I agree with the kindred spirit, I often think Grace reminds me of an "old soul"- she seems wise beyond her years sometimes. Maybe it's the special heart?

    Hugs to you and yours!!