This is a blog for my daughter Scarlett. She was born with a complex congenital heart defect known as Tetralogy of Fallot with Pulmonary Atresia. She is my little hero.

Tuesday, December 22, 2009

Poor Weight Gain

I took Scarlett to the cardiologist today because of her poor weight gain. We were just there 2 weeks ago, and Beth said she wanted to see her in 2 weeks to see if she gained any weight. At our last visit, she weighed 14lbs 9oz. I was really hoping she passed the 15lb mark... but no such luck. :(

Today she weighed 14lbs 11oz. A measly 2 ounces is all she gained in 2 weeks. I immediately started crying. I have been trying to get her to gain weight. I've been fortifying my breastmilk with powder formula. I've been 'sneaking in' midnight feedings. I've been trying new foods (bananas, potatoes, rice, etc) on her, and it's not working. She's simply not drinking enough milk. :...(

Beth said that we need to give her less table food and more milk. She gave us some supplemental powder to add to her bottles to try to increase her carbohydrates. I really hope it works. If I go back in 2 weeks and she's only gained 2 ounces, I don't know what I'm going to do. Beth mentioned that if it gets bad enough we might have to consider putting the ng tube back in. :(  UGH!

BUT on the positive side, her heart looks and sounds great and she's not sick. Other than her weight gain, she's doing terrific health-wise and developmentally, she's right on track! Tonight she grabbed one of Violet's dolls (Cinderella), and was playing with it.

I hope our efforts at trying to increase her calories and carbs works. If you're reading this, say a little prayer that my skinny little baby gains some weight soon. Thanks!


  1. Sorry to hear about her poor weight gain, I'm sure it's stressful. Hoping and praying she starts putting on some chub.

  2. I hear ya on the weight gain, I get criticized every time we go to the cardiologist office myself, but what can you do? I feed Collin something every 3 hours. He can finally drink from a straw so I am going to do fatten him up with pedisure/ice cream milkshakes. Hoping he likes them. I got a new blender for Christmas! Collin stayed at 16 lbs for about SIX months...It drove me nuts! Have you tried giving her pasta SMOTHERED in butter, that is a good finger food