We had to put in a new feeding tube on Saturday night. But in doing so, we had to put in two because we put one down, checked for placement, and didn't hear anything so we thought it was in her lung instead of her stomach, so we pulled it out, and put another one in. It turned out that these weird new feeding tubes we have (the orange ones not the blue ones) have two openings on the end and one of the openings was not plugged. D'oh!
Well, then Saturday night she pulled it out (as I previously mentioned), so we put it back in (the same tube) again. Then on Sunday she pulled it out again and I put it back in. Sunday night when we checked for placement, we heard strange noises coming from her nose so we pulled the tube and put the last new tube we had in.
That makes 5 times we had to put a new feeding ng tube down her nose in a 24 hour period. : (
I don't know if it's related or not, but Scarlett threw up on Saturday night after Todd put the tube back in then tried to feed her. Yesterday, she threw up again. A couple of times. We called Beth [her cardiologist]and she said to monitor her and start giving her Motrin round the clock because helps with inflamation around her heart post-surgery.
Last night she was really super fussy. She went to bed pretty late (almost midnight), but then woke up practically every hour screaming (as best as she could with 85% of her voice). She was not happy the entire night. She would wake up crying and she hardly ate anything at all the entire evening. I mostly tube fed her because she wasn't drinking by mouth. This morning we called Beth again, we have an appointment tomorrow but we were so worried about Scarlett's restless night. Beth of course asked what her oxygen levels were and they were normal. We were just gonna wait and see what happens today since her sats are good.
Well, this afternoon, she threw up again. Then Todd waited a few hours and tried to feed her again and she threw up yet again, but this time it was dry heaves. Todd said it was horrible (to sit and watch her throw up), and it looked painful. Todd called Beth and she said to stop giving her breastmilk and start giving her Pedialyte until tomorrow. She's scheduled to have a chest x-ray, echocardiogram and exam tomorrow. I hope they're able to figure out why she's not eating and why she keeps throwing up. : (
I feel so bad for her and for you too. I can't imagine having to do that many feeding tubes in a day. And then to throw up. I am praying it is nothing and that she has a great check-up tomorrow.
ReplyDeleteHang in there! Hopefully just little glitches that need to be worked out! Could be the NG...Addie NEVER ate with the NG, threw up 75% of the time and they just plain stink! Sorry, but they do. I don't know what else to tell you because being discharged so soon after major surgery is new ground for me.... by the time we got out of that place, all the glitches had been worked and re-worked! She will get there and this will all pass soon! In my thoughts:)
ReplyDeleteStacey
Awwww, poor little darlin! I'm sorry to hear she's been struggling yesterday and today. I'll bet you and Todd are exhausted. Scarlett has a pretty strong gag reflex and her little nose and throat are probably pretty irritated just from having to have the tubes for meds and feeding. The doctor will be telling you how amazing her progress is tomorrow when she sees Scarlett, so try not to stress too much over present challenges. I'll be praying for her to transition to beginners foods really soon and for the tubes to become a thing of the past. She did so well with the sweet potatoes. I'm sure she must be hungry. Her checkup will be great! All you have to do is look at her to see how much better she is already, tube struggles or not.
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