This is a blog for my daughter Scarlett. She was born with a complex congenital heart defect known as Tetralogy of Fallot with Pulmonary Atresia. She is my little hero.

Wednesday, February 17, 2010

Baby's First Birthday

Today is Scarlett's Birthday. She did it! She survived her first year of life which actually says a lot. Last week was "Congenital Heart Defect Awareness Week". On my facebook page I posted facts about CHD all week. One of the facts that I listed was that each year 40,000 babies are born in the U.S.A. with a CHD. Of those 4,000 will not live to see their first birthday.  Scarlett has defied the odds. She is a fighter. She is a survivor.

Two open heart surgeries, 2 cat scans, 1 angiogram, 4 blood transfusions, countless chest xrays, echocardiograms, EKGs, needle pricks (for blood draws and shots), heart medications, feeding tubes, & cardiologist visits, she is alive and doing fantastic. If you saw her, you would never know the harrowing year she's been through. She just looks like a happy, healthy little baby.

I wish it were true. I wish she didn't have to have any more surgeries. I wish she didn't have to suffer anymore, but at the same time.... I am just to thankful and happy that I have her in my life. Sometimes I hear or read on other heartmom blogs "I wouldn't have it any other way"...[meaning that they are pround to be a heartmom, or they're proud of their heartbaby], but I guess I'm a little more selfish.

I wish that Scarlett was healthy. If I had my choice... I would chose for her NOT to have a heart defect. I hate to see my baby suffer. Yes, I am proud to be a heartmom, and yes I am a very strong advocate for heartbabies and CHD Awareness, but if I had the choice...I think I wish that CHDs didn't exist. But God chose me. God chose Scarlett. and there is a reason for everything under heaven.

There are tears in my eyes right now thinking about the first year of Scarlett's life. She's been through so much, and yet she is so calm and happy and perfect. My poor little daughter has endured more in her first year of life than most of us will ever have to suffer in a lifetime. She is so brave. She is my inspiration and my hero. Sometimes I just look at her and I start crying. She is such a tough little girl.

Happy Birthday Baby Scarlett. God Bless you and keep you healthy for many more birthdays to come. I love you baby bear.


  1. Your post just made me cry!!! What a brave little girl you have!!

  2. Happy belated birthday sweet princess!!!